I am writing to strongly urge my Representative, Cynthia Lummis, to cosponsor the Huntington's Disease Parity Act of 2013 (House Resolution 1015) and to my urge Senators, John Barrasso and Mike Enzi, to cosponsor the Senate companion, Senate 723. If passed, the Huntington's Disease Parity Act would make it easier for people with HD to receive Social Security Disability and Medicare Benefits.
Huntington's disease is a hereditary, degenerative brain disorder for which there is, at present, no effective treatment or cure. HD slowly diminishes an individual's ability to walk, talk and reason. Eventually, every person with HD becomes totally dependent upon others for his or her care. HD profoundly affects the lives of entire families -- emotionally, socially and economically.
The father of my niece and nephew has HD. I have watched his symptoms progress to the point where he walks with assistance and eats from a feeding tube. He lives in a full-time care facility and is only 31. Not only that, but each of his two kids have a 50/50 chance of getting HD themselves.
By cosponsoring the Huntington's Disease Parity Act, members of Congress can show their support for not only for my family, but the nearly 1,000,000 Americans who are touched by this terrible disease. I urge my fellow residents all across Wyoming to consider reaching out to our member of Congress and express their support for the Huntington’s Disease Parity Act of 2013. Together we can give those affected by HD hope for their futures.